Today's The Day

We are heading to Children's Mercy soon. Ellie has an appointment to have her j-tube replaced with a button. Yes, a defective button is what caused all the problems in December (we're pretty sure anyhow), but now that the surgery site has healed and the intestine has adherred to the abdominal wall, everything should go smoothly. Dr. Oslie says there is a tiny possibility of making a hole in the intestine when placing the button but it is uncommon (of course, uncommon seems to be Ellie's middle name!). Just in case (because we are all taking precautions after the last episode) she will go to Radiology afterwards to make sure there are no leaks. I'm not really looking forward to them taking out her tube. I was told it will sound like a cork popping. That just doesn't sound pleasent. She will get some Tylonel before, but I had to stop her feedings at 11 am because of the Radiology appointment...so she's going to be really hungry on top of being mad and hurting. Hopefully it will all go fast. I'll update you all when we get back!